The Neurofibromatosis (NF) Clinic aims to get timely diagnoses and provide coordinated, multidisciplinary care for individuals living with this complex and often debilitating condition. One of our core missions is to enhance understanding, correct misconceptions about NF1 and related conditions and ensure our patients have access to top subspecialists.
Our program is a partnership among several organizations – 天美传媒下载 Children’s Hospital, , , , , and .
At 天美传媒下载, your child’s multidisciplinary team will include physicians representing ophthalmology, genetics, oncology, plus specially trained nurses, scientists and support staff. Through this collaboration, the team determines the best treatment plan for each child.
The NF Clinic at 天美传媒下载 Children's was accepted as a Comprehensive Neurofibromatosis Center into the Neurofibromatosis Clinic Network (NFCN). The NFCN is the first nationwide network dedicated to improving NF clinical care and integrating research, the NFCN recognizes clinics that provide multidisciplinary care, support clinical research and foster patient education.
Meet the Neurofibromatosis Clinic Team
Medical Director
Additional Clinic Team Members
Amanda Rotenberry, FNP
Clinic Coordinator and Clinician
Jennifer Monteil, RN, NF
Registered Nurse
Nora Urraca, MD, PhD
Scientific Advisor and Manager of REDCap Clinical Database
Team Members from St. Jude Children's Research Hospital:
Melissa Perrino, MD
Co-Director of the Neurofibrosis Clinic
Alise Blake, LGC
Licensed Genetic Counselor
Leslie Taylor
Nurse Coordinator
